General Data Protection Regulation
From ISOGG Wiki
The General Data Protection Regulation 2017 is a regulation of the European Union (EU) which will apply from 25 May 2018. Its primary objective is to protect EU residents against the misuse of their personal data. The regulation applies to companies and organisations who have customers or members resident in the European Union.
- European Union GDPR portal
- Regulation (EU) 2016/679 of the European Parliament and of the Council of 27 April 2016 - the full text of the regulation
- A guide to the General Data Protection Regulation from the Information Commissioner's Office (UK)
- ICO (Information Commissioner's Office) blog. See in particular the series of articles on GDPR myths
- UK Data Protection Bill 2017
- UK Data Protection Bill (HL Bill 66) (full text)
- GDPR and You - a guide from the Data Protection Commissioner in Ireland
- GDPR Coalition (Ireland) This website includes a number of useful infographics which are available in different languages
- Wikipedia article on GDPR
- GDPR compliance strategy from Michelman and Robinson
Advice to project administrators
The European Union’s General Data Protection Regulation will apply to all DNA projects which have members resident in any of the EU’s 28 countries, including the UK and Ireland. The Regulation formalizes the legal rights of these project members and the obligations of administrators of DNA projects of which they may be members. The wording of the Regulation is very complex, although in essence the underlying principles are not novel. ISOGG has prepared a short Powerpoint presentation to help DNA project admins understand the relevant aspects of GDPR and to identify practical action points that will help reduce the likelihood of complaints, and how complaints should be handled. It may be a long time before there is clarity on many of the details, but in the meantime Project Admins who comply with this simple guidance should have little to fear from European authorities.
- Chassang G (2017). The impact of the EU general data protection regulation on scientific research. Ecancermedicalscience 11: 709. Published online 2017 Jan 3.