Page Actions

Privacy policies, consent forms and terms and conditions

From ISOGG Wiki

When taking a DNA test it is important to review the testing company's privacy policy, consent forms and terms and conditions. Some companies allow customers to choose the level of sharing.

Company policies



Family Tree DNA

Gene by Gene (FTDNA's parent company) complies with the EU-U.S. and Swiss-U.S. Privacy Shield Frameworks as set forth by the U.S. Department of Commerce. Gene by Gene has also committed to refer unresolved privacy complaints under the EU-US and Swiss-U.S. Privacy Shield Principles to an independent dispute resolution mechanism, the BBB EU Privacy Shield, Gene by Gene has also nominated their own Ombudsman for privacy issues: .

Customers can choose whether or not to sign the Consent to Participate in Matching (previously known as the release form). However, it should be noted that if a customer does not sign the release form they will not be able to view their matches in the database. The customer can adjust the privacy to choose whether or not to display their surname and their DNA results on the results page of the projects they have joined.



Living DNA


DNA project privacy policies

Some DNA projects have written their own privacy policies which they ask potential participants to read prior to joining the project. See, for example, the Taylor Family Genes Privacy Policy.

Guidelines and standards

Further reading

Academic papers

See also