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Privacy policies, consent forms and terms and conditions

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When taking a DNA test it is important to review the testing company's privacy policy, consent forms and terms and conditions. Some companies allow customers to choose the level of sharing.

Company policies



Family Tree DNA

Family Tree DNA has several levels of privacy protection for their customers. FTDNA has a detailed privacy policy.

Gene by Gene complies with the EU-U.S. and Swiss-U.S. Privacy Shield Frameworks as set forth by the U.S. Department of Commerce. Gene by Gene has also committed to refer unresolved privacy complaints under the EU-US and Swiss-U.S. Privacy Shield Principles to an independent dispute resolution mechanism, the BBB EU Privacy Shield, Gene by Gene has also nominated their own Ombudsman for privacy issues: .

FTDNA expects Project administrators to follow the GAP guidelines.

See also the FTDNA FAQs on privacy.

Customers can choose whether or not to sign the release form. However, it should be noted that if a customer does not sign the release form they will not be able to view their matches in the database. The customer can adjust the privacy to choose whether or not to display their surname and their DNA results on the results page of the projects they have joined.

Family Tree DNA introduced new privacy settings in 2015. Roberta Estes has written a blog post Family Tree DNA new privacy settings (27 July 2015) explaining how the new settings work. - The present-day version is explained at Privacy & Sharing Page



Living DNA


DNA project privacy policies

Some DNA projects have written their own privacy policies which they ask potential participants to read prior to joining the project. See, for example, the Taylor Family Genes Privacy Policy.

Guidelines and standards

Further reading

Academic papers

See also