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Ethics, guidelines and standards

From ISOGG Wiki

This page provides a selection of resources on the subject of ethics, guidelines and standards which are particularly applicable to genetic genealogists.

Codes of conduct, guidelines and standards for genetic genealogists

Codes of conduct, guidelines and standards for genealogists

Guidelines for direct-to-consumer genetic testing

Guidelines for medical and academic research

Statements on "race"

Academic papers

Other articles

Blogs

  • Blog.Bioethics.gov The blog of the Presidential Commission for the Study of Bioethical Issues
  • Genomethics blog A blog from Anna Middleton, a social scientist and registered genetic counsellor researching ethics and genomics at the Wellcome Trust Sanger Institute, Cambridge, UK
  • Genealogical Privacy blog

Relevant blog posts

Further reading

  • Bettinger BT and Russell JG. DNA testing: ethical considerations. Excerpted from Bettinger & Russell, "Genetics for Genealogy", Elizabeth Shown Mills, ed., Professional Genealogy: Preparation, Practice & Standards. (Baltimore: Genealogical Publishing Co., 2018), 361–90.
  • Cleary J. The ethical and legal aspects of genetic genealogy. In: Holton GS (ed). Tracing Your Ancestors Using DNA. Pen and Sword, 2019, pp13-31.
  • Lacopo MD. Uncovering family secrets: the human side of DNA testing. In: Wayne DP (ed). Advanced Genetic Genealogy: Techniques and Case Studies. Cushing, Texas: Wayne Research, 2019 pp325-337.
  • McHughen A. Some uncomfortable ethical dilemmas. In: DNA Demystified: Unravelling the Double Helix. Oxford University Press, 2020. Also available via Oxford Scholarship Online.
  • Moore S, Rosenthal D and Robinson R. Ethical dilemmas. In: The Psychology of Family History: Exploring Our Genealogy. London: Routledge, 2020.
  • Russell JG. Ethical underpinnings of genealogy. In: Wayne DP (ed). Advanced Genetic Genealogy: Techniques and Case Studies. Cushing, Texas: Wayne Research, 2019, pp303-324.

Organisations

General links

See also